National Council on Intellectual Disability

Services provided: information to people with intellectual disability, their families, carers, advocates and service providers; policy advice, systemic advocacy, community education, and information provision and dissemination. Website provides information on services who provide diagnosis and assessment of a disability.
The NSW Council for Intellectual Disability (NSW CID)

A peak body representing the rights and interests of people with intellectual disability in NSW.
Centre for Disability Health (CDH)

Part of the department of Communities and Social inclusion (South Australia) has clinics specialising in services for people with intellectual disability and people with acquired brain injury, physical or neurological conditions.
Centre for Developmental Disability Health, Victoria (CDDHV)

An academic unit in the Department of General Practice, Primary Health at Monash University funded by Vic Government Department of Human Services. Providing information on health of people with intellectual and developmental disability.
Intellectual Disability Rights Service

A specialist legal advocacy service for people with intellectual disability in NSW. They work with and for people with intellectual disability to exercise and advance their rights.
The Centre for Developmental Disability Health (CDDH) Victoria

Fact Sheets on topics and issues related to intellectual/ developmental Disability. Queensland Centre for Intellectual and Developmental Disability Information on health of people with intellectual and developmental disability. The Centre is part of the School of Medicine at the University of Queensland.

Centre for Disability Studies, Sydney

Affiliated with the Sydney Medical School and the Royal Rehabilitation Centre Sydney. Information on health and other issues for people with intellectual and other disability.
The NSW Developmental Disability Health Unit (DDHU) (aka. 'the clinic')

Part of the University of Sydney the Centre for Disability Studies (CDS) provides a consultant service for people with developmental disabilities, their family and support persons. It works in conjunction with the person's general practitioner to ensure access to high quality health care through a network of specialists and allied health personnel.

Other topics
Prader-Willi Syndrome Association

A self help group comprising people born with Prader-Willi Syndrome, parents, friends and interested professionals. The aim of this site is to provide accurate information on Prader-Willi Syndrome (PWS) and resources that are available.
Down Syndrome NSW

A community based, not-for-profit association established by the families of people with Down syndrome. They provide support and information to people with Down syndrome, their families, service providers and the wider community.
The Fragile X Association of Australia

A non-profit organisation made up of family, friends, therapists, doctors and carers of people with Fragile X Syndrome. Supporting intervention, programs research into Fragile X. Promoting awareness and education in relation to Fragile X through lectures, meetings, classes, conferences, seminars and the publication of booklets, reports and media releases, Advising and lobbying government and other agencies.
SAKKS - Supporting Aussie Kids with Kabuki Syndrome

A registered not for profit charity who support families/caregivers who have a child with Kabuki Syndrome, provides information, external links to genetics departments and research as well as links to medical information and personal stories describing many of the challenges of coping with a child that has Kabuki Syndrome.
Tourette Syndrome Association of Australia

A non-profit organisation of people with TS, their families, health and education professionals and other interested people. Disseminates educational materials in the fields of health care, education and welfare service, provides telephone counselling and operates support groups, support parent advocacy and other services to help families cope. The association publishes a quarterly newsletter. Key references for health professionals
Centre for Disability Studies
Health Care in People with Intellectual Disability: Guidelines for General Practitioners and other resource.
Health Assessments for People with an intellectual disability

Case studies and ready reference.
International Association for the Scientific Study of Intellectual Disabilities

Health guidelines for adults with an intellectual disability. Associations and Societies
IASSID -The International Association for the Scientific Study of Intellectual Disabilities

An international and interdisciplinary scientific organisation that promotes worldwide research and exchange of information on intellectual disabilities.

The Australian Society for the Study of Intellectual Disability Presents membership information, events details and recent research.
Journal of Intellectual & Developmental Disabilities

Journal of ASSID, formerly hosted by CDS.
ISAAC - The International Society for Augmentative and Alternative Communication

An organization devoted to advancing the field of Augmentative and Alternative Communication (AAC).

An association whose purpose is to serve as a forum for issues in rehabilitation and assistive technology. Current international research
Journal of Applied Research in Intellectual Disabilities

International journal
The Tizard Centre

Part of the School of Social Policy, Sociology and Social Research at the University of Kent at Canterbury. One of the leading UK academic groups working in learning disability and community care. It focuses on the relationship between policy, management and practice and in bridging psychology, social policy and other related disciplines to help improve services for people with a disability.

Contact Form

Subscribe to Newsletter